My boyfriend has charcot marie tooth disease and im worried that his condition would get worse in the future.?
January 11, 2013My family member is trying to convince me to leave him because she says that in the future it would be challenging for him to do anything with you. I love him and I dont want to leave him. I just dont know how to change others point of view. She tells me that he will let his anger out on me later on when people start "feeling sorry for us"
This is outrageous. She is the one who "feels sorry," but for you.
Who exactly will feel sorry for you? She seems to be the expert and first person in that club.Having a severe case of CMT for the past lifetime, I’m 43 and my CMT began expressing itself at age 5, I can say the following…
College was in Hawaii, grad school in the Netherlands, language school, foreign exchange family, and first post grad school job were in Germany, with the nurturing foreign exchange ties lasting until today.
I speak both Dutch and German extremely well, and I worked lived and worked in Amsterdam until 2007, a total of 14 years. At 43 I was having some troubles with CMT… these were pain and fatigue and increasing difficulty with movement.
What did I do… I started taking yoga, in the form of Yoga Tune Up (www.yogatuneup.com), and in the space of 2 short years, I lost 40 pounds without leaving the floor (my ankles are my weakest point), and I had extreme increases in strength, balance, coordination, and proprioceptive capability, which is knowing where your body parts are in space and in relation top each other without the aid of your eyes, and the ability to recruit more muscle groups.
I have significantly less pain and fatigue, and digestive difficulties, such that I am taking 3 fewer medications now than in 2007. We are able to establish new neural connections where none were possible before, causing us to throw out all preconceived notions and most of what I had been told by doctors over the past 25 years.
And preconceived notions is what this is all about. (continued)
January 11th, 2013 at 3:46 pm
This is outrageous. She is the one who "feels sorry," but for you.
Who exactly will feel sorry for you? She seems to be the expert and first person in that club.Having a severe case of CMT for the past lifetime, I’m 43 and my CMT began expressing itself at age 5, I can say the following…
College was in Hawaii, grad school in the Netherlands, language school, foreign exchange family, and first post grad school job were in Germany, with the nurturing foreign exchange ties lasting until today.
I speak both Dutch and German extremely well, and I worked lived and worked in Amsterdam until 2007, a total of 14 years. At 43 I was having some troubles with CMT… these were pain and fatigue and increasing difficulty with movement.
What did I do… I started taking yoga, in the form of Yoga Tune Up (www.yogatuneup.com), and in the space of 2 short years, I lost 40 pounds without leaving the floor (my ankles are my weakest point), and I had extreme increases in strength, balance, coordination, and proprioceptive capability, which is knowing where your body parts are in space and in relation top each other without the aid of your eyes, and the ability to recruit more muscle groups.
I have significantly less pain and fatigue, and digestive difficulties, such that I am taking 3 fewer medications now than in 2007. We are able to establish new neural connections where none were possible before, causing us to throw out all preconceived notions and most of what I had been told by doctors over the past 25 years.
And preconceived notions is what this is all about. (continued)
References :
Personal experience with A severe case of Charcot Marie Tooth disease, aka HMSN, and all of the ancillary learning I have accomplished from caring for myself with this condition.